Longer with MS than without - Grischa Markus Freimann - E-Book

Longer with MS than without E-Book

Grischa Markus Freimann

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Beschreibung

Being diagnosed with a serious illness is often followed by despair and helplessness. Those affected wonder how their illness will affect their everyday lives and the rest of their lives. Dr. Freimann, who was diagnosed with multiple sclerosis at a young age after experiencing various unexplained symptoms, also found himself in this situation. In this work, the author reviews his life to date, most of which he has now spent with the disease.

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Seitenzahl: 43

Veröffentlichungsjahr: 2024

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Dedication

In memory of my father, Dr. Hans Freimann,

who passed away on Saturday, June 24, 2023.

Foreword

You get more than 70,000 hits on Amazon when you search for the keyword "MS". An overwhelming number in itself. There are descriptions of the "disease of a thousand faces", medical works and biographies, tips, works on various treatment methods. Some even promise a "cure". Whatever this is supposed to look like, it is extremely rarely medically tenable. There are enough charlatans who claim to be "cured", even if you can see that they have the disease. My approach is to describe my life: I was diagnosed with MS in 1993, with the two symptoms required at the time (MRI and cerebrospinal fluid puncture). Nowadays, one of these indications is enough. I now (May 2023) have a GdB of 90 with the signs G, aG and B, care level 4 and an EDSS of 8.0 (on the Kutzke scale: 0 means "no restriction, 10 means "death from MS"). With this little letter, I would like to present one of the 1000 faces - to be continued. I'm not talking about friendships with girls, although I did have some - well into my student days. But they were rather short-lived friendships that then faded away, never ones that were important for the MS. That's why I've left them out here.

Chapter 1

Childhood and elementary school

Even the birth was unusual: "He turned his head" (as my mother tells it) - immediate anaesthesia was the usual consequence. The amniotic sac had already broken before the birth (without anyone noticing). Mother and doctors managed it: I was born on July 10, 1969 at the Freiburg University Hospital. My parents (and then I too) lived in the Kappel district of Freiburg (at Schulerdobel 2). I subsequently received the usual vaccinations against measles, tetanus, smallpox, whooping cough and diphtheria; both I and my sister, who was a good three years younger, had mumps. Childhood illnesses are repeatedly cited as a possible cause of MS. Well, I had a viral illness as a small child. Apart from that, I underwent the scheduled examinations with my pediatrician. Of course, there were no indications that I would later develop MS. Today's memory (fortunately only slightly impaired by MS) only allows me to remember my childhood (lovingly shaped by my mother and father): it was a time of often agonizing nightmares. Like the one where we were out shopping together, then suddenly the parents were gone, and then the lights went out. Or the one where someone threw a pile of dirt at me, which then grew on my head. I'm sure there were many more, but 50 years later they have (mercifully) been forgotten.

How did Auntie I get into this device?

I only have one vague memory of my first day at school (certainly with a big school bag) and the first two years of elementary school: a big fire drill during which the school had to be evacuated.