The Tourette Syndrome and OCD Checklist E-Book

Susan Conners

• Herausgeber: John Wiley & Sons
• Kategorie: Bildung
• Serie: J-B Ed: Checklist
• Sprache: Englisch

Seitenzahl: 199

Veröffentlichungsjahr: 2011

Beschreibung

Up-to-date, reliable information about Tourette Syndrome and related disorders for teachers and parents Children with TS are often teased and punished for the unusual yet uncontrollable symptoms of their disorder. Academic failure is common. The Tourette Syndrome/OCD Checklist helps parents and teachers to better understand children and youth with TS and/or OCD and provide the support and interventions these children need. Presented in a simple, concise, easy-to-read checklist format, the book is packed with the latest research, practical advice, and information on a wide range of topics. * Provides a wealth of information on Tourette Syndrome, Obsessive-Compulsive Disorder, and related conditions * Includes strategies for discipline and behavior management, advice on supporting and motivating kids with TS and OCD, homework tips, and more * Shows how to educate peer students about TS and OCD Loaded with practical information, strategies, and resources, this book helps parents and teachers to better understand Tourette Syndrome and OCD and shows how every individual can reach their potential in school and in life.

Leseprobe

Contents

Cover

Praise for The Tourette Syndrome and OCD Checklist

Jossey-Bass Teacher

Title Page

Copyright

Dedication

About This Book

About the Author

Foreword

Preface

Introduction

Section One: Basic Information About TS, OCD, and Associated Disorders

1.1 What Is Tourette Syndrome (TS)?

1.2 Manifestations of Motor Tics

1.3 Manifestations of Vocal Tics

1.4 Waxing and Waning of Symptoms

1.5 Suppression of Symptoms

1.6 Other Related Tic Disorders

1.7 Medical Treatment of TS

1.8 Associated Disorders

1.9 What Is Attention Deficit Hyperactivity Disorder (ADHD)?

1.10 Dysgraphia

1.11 Executive Dysfunction

1.12 Depression

1.13 Sleep Disorders

1.14 Sensory Processing

1.15 Learning Disabilities

1.16 Auditory Processing Difficulties

1.17 Social Skills Deficits

1.18 Behavioral Issues

1.19 What Is Obsessive-Compulsive Disorder (OCD)?

1.20 Manifestations of OCD

1.21 Medical Treatments for OCD

1.22 Behavioral Interventions for OCD

Section Two: Understanding the Impact of TS and OCD

2.1 Why It Can Be Difficult to Recognize TS and OCD

2.2 The Impact of TS and OCD on the Family

2.3 The Impact of TS on School Performance

2.4 The Impact of OCD on School Performance

2.5 Tips for Accentuating the Positive

2.6 Tips for Ensuring Success at School

Section Three: Checklists for Parents

3.1 What Parents Can Do at Home and at School to Support Children with TS and OCD

3.2 Preventing Meltdowns Through Positive Behavioral Management and Supports

3.3 Accommodations, Tips, and Environmental Changes

3.4 Managing Homework

3.5 Suggestions for School Breaks, Rainy Weekends, and Summer Vacation

3.6 School Issues

3.7 Synopsis of an Individualized Education Plan (IEP)

3.8 Tips for Being an Effective Advocate

3.9 Sample Letter for Requesting an IEP

Section Four: Checklists for Teachers

4.1 Top Ten Things Teachers Need to Know About Tourette Syndrome

4.2 Tips for Working with Students with TS and OCD in the Classroom

4.3 Tips for Training Staff on Working with Students with TS and OCD

4.4 Tips for Educating Peers About TS and OCD

4.5 A Peer In-Service Model

4.6 Strategies for Dealing with Motor and Vocal Tics in the Classroom

4.7 Accommodating Motor Tics

4.8 Dealing with Vocal Tics

4.9 Accommodating Vocal Tics

4.10 Attitude Is Everything

4.11 Classroom Observation Form

4.12 Tips for Addressing Challenging Behaviors

4.13 Functional Behavioral Assessment and Positive Behavior Intervention Plan for Students with TS, OCD, and ADHD

4.14 Accommodations for Associated Disorders

Section Five: Other Helpful Checklists for Parents and Teachers

5.1 Educational Rights of Students with TS and OCD

5.2 Individuals with Disabilities Education Act (IDEA)

5.3 What Is a 504 Accommodation Plan?

5.4 Requesting Services

5.5 Sample Physician's Letter

5.6 How to Proceed If You Disagree with the School's Evaluation

5.7 Being a Role Model for Children with TS or OCD and Their Peers

5.8 Relaxation Techniques

5.9 School Placement

5.10 Sources of Help and Support

5.11 Recommended Organizations, Web Sites, Books, Videos, Articles, and Brochures

Appendix: Real-Life Scenarios

Motor and Vocal Tics

OCD and Anxiety

Dysgraphia

Behavior Plans

Miscellaneous

Executive Dysfunction

Index

Praise for The Tourette Syndrome and OCD Checklist

“This book is truly a work of art, heart, and science!”

—Barbara J. Coffey, MD, MS, director, Tics and Tourette's Clinical and Research Program, New York University, Langone School of Medicine; associate professor, Department of Child and Adolescent Psychiatry; research psychiatrist, Nathan Kline Institute for Psychiatric Research, New York University Child Study Center

“This is a fantastic book full of wit and wisdom from an educational pro. I have known Susan Conners for over twenty years and have had the good fortune to watch her speak and engage an audience. If you don't get a chance to see Conners in action, this book is the next best thing. Her depth of knowledge and capacity to make a difference in the lives of children shines through on every page.”

—John T. Walkup, MD, professor of psychiatry, and director, Division of Child and Adolescent Psychiatry, Weill Cornell Medical College; chair, TSA Medical Advisory Board

Jossey-Bass Teacher

Jossey-Bass Teacher provides educators and parents with practical knowledge and tools to create a positive and lifelong impact on student learning. We offer classroom-tested and research-based teaching resources for a variety of grade levels and subject areas. Whether you are a parent, teacher, or another professional working with children in grades K-12, we want to help you make every learning experience successful.

From ready-to-use learning activities to the latest teaching framework, our value-packed books provide insightful, practical, and comprehensive materials on the topics that matter most. We hope to become your trusted source for the best ideas from the most experienced and respected experts in the field.

Copyright © 2011 by Susan A. Conners. All rights reserved.

Published by Jossey-Bass

A Wiley Imprint

989 Market Street, San Francisco, CA 94103-1741-www.josseybass.com

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Limit of Liability/Disclaimer of Warranty: While the publisher and author have used their best efforts in preparing this book, they make no representations or warranties with respect to the accuracy or completeness of the contents of this book and specifically disclaim any implied warranties of merchantability or fitness for a particular purpose. No warranty may be created or extended by sales representatives or written sales materials. The advice and strategies contained herein may not be suitable for your situation. You should consult with a professional where appropriate. Neither the publisher nor author shall be liable for any loss of profit or any other commercial damages, including but not limited to special, incidental, consequential, or other damages.

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Library of Congress Cataloging-in-Publication Data

Conners, Susan, 1948-

The Tourette syndrome & OCD checklist : a practical reference for parents and teachers/Susan Conners; foreword by Cathy Budman.-1st ed.

p. cm.-(Jossey-Bass teacher)

Includes index.

ISBN 978-0-470-62333-6 (pbk.)

ISBN 978-1-118-07527-2 (ebk.)

ISBN 978-1-118-07528-9 (ebk.)

ISBN 978-1-118-07529-6 (ebk.)

1. Tourette syndrome in children. 2. Obsessive-compulsive disorder in children.

I. Title. II. Title: Tourette syndrome and OCD checklist.

RJ496.T68C66 2011

618.92′83-dc22

I would like to dedicate this book to my two Marys: my best friend for twenty-five years, Mary Lohrman, and my younger sister, Mary Conners. I lost both of these two beloved people in the past three years and both at much too young an age. My friend, Mary, was one of the most extraordinary women I have ever met-a teacher, a mom, and a humanitarian. We spoke every day, sometimes for hours. Her passing left a huge hole in my life that can never be filled. Everyone should be as blessed as I was to have such a wonderful friend.

My sister, Mary, was my hero. Most people in this world faced with the many obstacles that she had to overcome in life-TS, OCD, depression, and a significant hearing loss-would have sat back and let the world support them. Instead she chose to go back to school, earn her bachelor's and master's degrees in her late forties, and go to work as a mental health counselor helping others. It was the unconditional love and friendship of these two ladies that was "the wind beneath my wings" as I wrote this book.

I would also like to thank my beloved Andy who has shared my life for sixteen years through good times and bad. He will hopefully be at my side for many more years to inspire me to continue the work that I do.

About This Book

Tourette Syndrome (TS), obsessive-compulsive disorder (OCD), and the other associated neurological disorders discussed in this book are some of the most baffling and complex disorders currently known. They are also some of the most misunderstood disorders you will encounter. Children with these disorders can be challenging to both teach and parent because of the complexities and the ever-changing nature and severity of their symptoms. Unless you have walked in the shoes of these children, it is very difficult to truly understand how disruptive these disorders can be to the individual who has them. It is equally difficult to know how to accommodate these symptoms without enabling the child. It is my hope that this book will:

Teach you what Tourette Syndrome and OCD are and, just as important, what they are notHelp you understand the impact of these disorders on all aspects of a child's lifeDispel the stereotypic myths about TS and OCDGive you practical techniques, strategies, and accommodations for both educating and parenting children with these disordersAssist you in obtaining school services and creating an appropriate education plan and placement for the childHelp you see the child and her strengths, not just the symptoms of her disorder

About the Author

Susan Conners, MEd, is a nationally and internationally sought-after speaker, teacher trainer, and author on the topic of the education of children with Tourette Syndrome (TS), obsessive-compulsive disorder (OCD), and other related neurological disorders. She has presented hundreds of conferences and workshops in forty-eight of the fifty states, in Canada, Puerto Rico, Spain, and Norway. She was a multiaward-winning middle school teacher for thirty-three years and has TS, OCD, and learning disabilities herself. Her work focuses on educating educators about the complexities of TS and OCD, providing common sense and effective accommodations and strategies to help students with these disorders to be successful, assisting educators in developing positive behavior intervention plans, and helping to change the way we look at children with this spectrum of disorders.

Conners has authored many articles and brochures and produced videos on this topic. She has appeared on and served as a consultant for several national television programs on TS, including ABC's 20/20, The Geraldo Show, The Montel Williams Show, ABC's The Practice, the BBC Discovery Channel, the Emmy Award-winning HBO documentary on Tourette Syndrome (I Have Tourette's, but Tourette's Doesn't Have Me), and ABC Primetime's Emmy Award-winning documentary (Living with Tourette's). She served on the national board of directors of TSA, Inc. for twelve years. She was the founder of TSA of Greater NY State and has served as its president for twenty-five years. For seven years following her retirement from full time teaching, she was employed by national TSA, Inc. as their Education Specialist. Susan continues to work as the volunteer president of TSA, Inc. of Greater NY State and as a private consultant and speaker across the country.

Foreword

For many educators, parents, and health care professionals, symptoms of the neurological disorders Tourette Syndrome (TS) and obsessive-compulsive disorder (OCD) are difficult to recognize and understand. Rigorous public health efforts have increased awareness of the now well-established neurobiological and hereditary underpinnings of TS and OCD. Yet without the benefits of truly meaningful support and interventions, many people with these conditions continue suffering from dramatic and more subtle disruptions of daily life.

As a specialist who has diagnosed and treated many children and adults with TS and OCD for over twenty years, I know this to be true. The first person with Tourette Syndrome I encountered during medical training in the mid-1980s was a twenty-six-year-old man with TS. He was misdiagnosed with schizophrenia as a teenager because of his sometimes bizarre repetitive involuntary utterances and movements. Frustrated by his problems concentrating and rejected by classmates, he eventually dropped out of school, only to languish for over a decade in a state mental institution before his neurological symptoms were finally diagnosed and treated.

At that time TS was still believed to be quite rare; milder cases were largely unrecognized, particularly in school settings. This point was particularly emphasized by the highly gifted and uniquely qualified educator Susan Conners when she presented at a major conference on TS and associated disorders at our institution in 1994. A teacher, a school administrator, and, most important, a person who had lived with TS her entire life, Susan translated and taught us about the internal and external worlds of TS. Her charismatic personality, humor, and keen insights were riveting. At one point during her talk, Susan invited the audience (composed of health care professionals, educators, and families) to temporarily experience life as a child with TS in the classroom. She asked us to perform a seemingly simple task: to write down the Pledge of Allegiance. However, Susan also instructed us to blink our eyes and erase the words we were writing every time we heard her clap her hands, which she proceeded to do at irregular and unpredictable intervals. Needless to say, few, if any, of us were able to complete the task in the allotted time. We learned firsthand how a relatively effortless exercise or action can be transformed by tic and/or obsessive-compulsive symptoms into a frustrating, arduous challenge.

It was also Susan Conners, in her capacity as the National Tourette Syndrome Association's education committee chair, who offered testimony to Congress in 2001 that helped lay the groundwork for TS to be correctly recognized as a neurobiological condition, leading to its inclusion for the very first time in 2004 in the definition of Other Health Impaired (OHI) for the Individuals with Disabilities Education Act (IDEA). This landmark decision made it possible for children with these impairing neurological symptoms to receive the necessary modifications and supports to learn effectively and thrive in the classroom.

Now, in this beautifully comprehensive and practical guide, Susan has drawn upon her considerable professional and personal experiences with TS to deliver a detailed road map for parents and educators. This text provides relevant background on Tourette Syndrome and its associated disorders, informs and promotes understanding of what these symptoms are and how they impact on the individual at home and in school and, most important, provides specific tips and recommendations for effective support and interventions.

As you read and refer to this book, realize that Susan Conners is an expert guide who has issued us a temporary visa to visit, tour, and experience the world of TS. Unlike Susan and many other people with TS, however, the reader can enter and exit this world at his or her own free will. Take time to absorb the multitude of information and advice that is expertly organized here into useful sections for easy reference and teach your children well.

I am grateful to Susan Conners for enlightening families, schools, and health professionals about what it is like to have this disorder, what makes things worse, and what makes things better.

Cathy Budman, MD Director, Movement Disorders Center in Psychiatry Associate Professor of Psychiatry, Hofstra University School of Medicine Manhasset, New York