User Involvement in Health Care E-Book

• Herausgeber: John Wiley & Sons
• Kategorie: Fachliteratur
• Sprache: Englisch

Seitenzahl: 241

Veröffentlichungsjahr: 2011

Beschreibung

How can the needs and perspective of patients be incorporated in the design and redesign of health services? Health organizations are focusing more and more on patients - and requiring their employees to practise patient focused care. The Modernisation Initiative described in this book explores in three health service areas (kidney, stroke and sexual health services) how patients' and carers' involvement may inform and shape quality improvement work This book guides you through the issues and challenges that teams seeking to involve users in changing health services are likely to face. It offers a wealth of practical knowledge about involving users. Those undertaking similar programmes, whether in primary care or hospital based, will find ideas and examples in this book to inspire and guide them.

Leseprobe

Contents

Contributors

Foreword

Acknowledgements

CHAPTER 1 User involvement – a story of our time

Trisha Greenhalgh, Charlotte Humphrey & Fran Woodard

Introduction

The modernisation initiative

References

CHAPTER 2 What is already known about involving users in service transformation?

Ceri Butler & Trisha Greenhalgh

Introduction

The UK experience

What is ‘user’ involvement and who are these ‘users’?

Theoretical models of user involvement: choice and voice

Contemporary approaches to user involvement: co-design, co-production, co-leadership and mutual learning

References

CHAPTER 3 Experience-based co-design

Vikki Pearce, Paula Baraitser, Gaynor Smith & Trisha Greenhalgh

Example 1: Mystery shoppers

Example 2: Whole systems events to improve kidney services

Example 3: Redesigning the physical environment of a sexual health clinic

Challenge 1: Attracting a representative cohort of users

Challenge 2: Making involvement achievable and worthwhile for users

Challenge 3: Preparing users

Challenge 4: Preparing and including staff

Challenge 5: Identifying problems

Challenge 6: Generating potential solutions

Challenge 7: Selecting solutions and deciding next steps

Challenge 8: Achieving closure

Summary: Ten tips for successful co-design

References

CHAPTER 4 Patients as teachers and mentors

Gaynor Smith, Jane Hughes & Trisha Greenhalgh

Example 1: Learning from people living with stroke

Example 2: Peer support in the kidney service

Challenge 1: Recognising where the expertise lies

Challenge 2: Clarifying roles and responsibilities

Challenge 3: Overcoming staff resistance

Challenge 4: Supporting users in their teaching/mentoring role

Challenge 5: Practicalities

Summary: Ten tips for involving service users in teaching or mentoring

References

CHAPTER 5 Co-producing information

Jane Hughes, Gaynor Smith & Trisha Greenhalgh

Example 1: Co-producing DVDs for kidney patients

Example 2: A small-scale project to develop accessible menus for stroke patients

Example 3: Strategic-level involvement of stroke patients in developing an information strategy

Example 4: Developing and improving sexual health information

Challenge 1: Making the user experience the starting point

Challenge 2: Capturing stories

Challenge 3: Deciding on content and style

Challenge 4: Timing and budget

Challenge 5: Seeing how the information is used

Summary: Ten tips for effective co-production of information

References

CHAPTER 6 Involving users in leadership and governance

Fran Woodard, Lizzy Bovill & David Freedman

Example 1: A patient chair in the Kidney MI Steering Group

Example 2: Leadership and governance in the stroke pathway

Challenge 1: Defining what value the service user will add

Challenge 2: Recruiting, training and retaining users

Challenge 3: Managing the micro-politics of the boardroom

Challenge 4: Supervision and performance management

Challenge 5: Ensuring there is something in it for the user

Summary: Ten tips for involving users in leadership and governance

References

CHAPTER 7 Inherent tensions in involving users

Trisha Greenhalgh, Fran Woodard & Charlotte Humphrey

Tension 1: Representation and representativeness

Tension 2: ‘Staying naïve’ or ‘going native’

Tension 3: Power shifts or partnerships?

Tension 4: To pay or not to pay users?

Tension 5: ‘First, do no harm’ or ‘tell it like it is’

Tension 6: ‘Real’ participation or ‘playing the user card’?

Conclusion

References

CHAPTER 8 Where next for user involvement?

Trisha Greenhalgh, Fran Woodard & Charlotte Humphrey

Abolishing ‘user involvement’ bodies – or developing their role?

User networks

Promises and pitfalls of new technologies

The role of the third sector

The link between self-management and user involvement in service transformation

Towards more sophisticated evaluation of user involvement

Conclusion

References

Index

This edition first published 2011, © 2011 by Blackwell Publishing Ltd

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Library of Congress Cataloging-in-Publication Data

User involvement in health care/edited by Trisha Greenhalgh, Charlotte Humphrey, Fran Woodard.p.; cm.Includes bibliographical references and index.ISBN 978-1-4051-9149-41. Patient participation–Great Britain. 2. Great Britain. National Health Service. 3. National health services–Great Britain. I. Greenhalgh, Trisha. II. Humphrey, Charlotte. III. Woodard, Fran.[DNLM: 1. Great Britain. National Health Service. 2. Patient Participation–Great Britain. 3. State Medicine–Great Britain. W 85 U84 2011]R727.42.U84 2011610.69’6–dc222010024522

ISBN: 9781405191494

A catalogue record for this book is available from the British Library.

This book is published in the following electronic formats: ePDF 9781444325171; Wiley Online Library 9781444325164

Contributors

Ceri ButlerLecturer in Health Services ResearchDivision of Medical EducationUniversity College LondonUCL Medical SchoolLondon, UK

Paula BaraitserMedical Adviser, English National Chlamydia Screening ProgrammeConsultant in Sexual HealthKing’s College Hospital NHS Foundation TrustLondon, UK

Lizzy BovillAssistant Director of OperationsLondon Ambulance Service NHS TrustLondon, UK

David FreedmanFreelance writer, London, UK

Trisha GreenhalghProfessor of Primary Health CareQueen MaryUniversity of LondonLondon, UK

Jane HughesResearch FellowDepartment of Interdisciplinary Studies in Professional PracticeSchool of Community and Health SciencesCity University LondonLondon, UK

Charlotte HumphreyProfessor of Health Care EvaluationKing’s College LondonLondon, UK

Vikki PearceProgramme ManagerNHS Tower HamletsLondon, UK

Gaynor SmithEnd of Life Care ProgrammeModernisation InitiativeSt. Thomas’ HospitalLondon, UK

Fran WoodardDirector, Cancer ProgrammeIntegrated Cancer CentreKing’s Health PartnersLondon, UK

Foreword

This book draws on the collective experience of one of the largest, most visionary and most successful system-wide change initiatives in recent NHS history, that of the Modernisation Initiative of the Guy’s and St Thomas’ Charity.1 The remit was to make a ‘big difference’ to local services by ensuring that the patient voice was the lifeblood of the programme.

Over a 3-year period, this initiative established a genuine partnership at all levels between service improvement experts, dozens of clinicians and over 500 patients and carers. This partnership proved a key catalyst in transforming the quality of care in local kidney, stroke and sexual health services.

When I was first asked to chair the Kidney Disease Modernisation Initiative (KDMI), I was absolutely stunned. I was at a loss for words. As a kidney patient for 25 years, this was the first time anyone had ever asked me – a patient – to contribute in any way to share my experience, improve services and help others.