Patient and Public Involvement Toolkit E-Book

Julia Cartwright

• Herausgeber: John Wiley & Sons
• Kategorie: Fachliteratur
• Serie: EBMT-EBM Toolkit Series
• Sprache: Englisch

Seitenzahl: 131

Veröffentlichungsjahr: 2011

Beschreibung

* Providing information to implement a new core healthcare requirement - patient involvement * Including real case scenarios to illustrate the principles of effective PPI * Following the unique Toolkit series format of flowcharts and layouts that guide the reader through each section

Leseprobe

Contents

Foreword

CHAPTER 1 Introduction

The toolkit series

Aim of this toolkit

Why have a PPI toolkit?

The language of PPI

Getting started

Levels of PPI

Further reading

CHAPTER 2 What is patient and public involvement?

Why bother with PPI?

Why is PPI growing in health and social care?

Changes in PPI legislation

How does PPI help organizations and services and care change?

Improving health services

Improving health research

Global networks

Monitoring of health services

Developing health organizations

Developing an organizational strategy for PPI

Define structures within your organization

Define structures outside your organization

Four ways to develop PPI

References

Further reading

European web link

CHAPTER 3 How to conduct effective PPI

Searching for literature about involvement

Searching the grey literature for PPI publications

PPI search terms

Searching and citing issues in PPI

Involving the right people

PPI methods and tools

Reviewing documents

Designing a questionnaire for a survey

Running a focus or discussion group

Running a workshop

Practical considerations

An icebreaker: tree types

Exhibitions and road shows

Interviews

References and further reading

CHAPTER 4 Building relationships

Recruitment and networking

Methods for recruitment

Support and training for participants and professionals

Interpersonal skills: running effective meetings and workshops

Role of chairperson or facilitator

Dealing with difficult situations and managing conflict

Being inclusive

Avoiding the pitfalls

Online communication in PPI

Communicating in advance

Further reading

Useful web resources

CHAPTER 5 Evaluation of PPI

Evaluating PPI methods and process

Evaluating the impact of PPI on a service or project

Evaluating the impact of PPI on the people who took part

References

Further reading

CHAPTER 6 The future of PPI

Allocation of resources and better use of resources

Accessibility of services

Health professionals working with patients and the public

Developing trust and credibility between the public and health organizations

Improving quality of care and reducing harm

Final thoughts

Conclusions

References

Further reading

Index

This edition first published 2011, © 2011 by Julia Cartwright, Sally Crowe, Rafael Perera, Carl Heneghan & Douglas Badenoch.

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Library of Congress Cataloging-in-Publication Data

Cartwright, Julia.

Patient and public involvement toolkit/by Julia Cartwright, Sally Crowe; editors, Carl

Heneghan, Rafael Perera, Douglas Badenoch.

p.; cm.

Includes bibliographical references.

ISBN 978-1-4051-9910-0

1. Patient participation. 2. Health planning. I. Crowe, Sally. II. Heneghan, Carl. III. Perera, Rafael. IV. Badenoch, Douglas. V. Title.

[DNLM: 1. Patient Participation-methods-Great Britain-Handbooks. 2. Consumer Participation-Great Britain-Handbooks. 3. Delivery of Health Care-methods-Great Britain-Handbooks. W 49]

R727.42.C37 2011

362.1-dc22

2010038256

ISBN: 978-1-4051-9910-0

A catalogue record for this book is available from the British Library.

Foreword

“Involve, Engage, Empower” – how often have we heard those words used In health care planning, only to find that they really mean nothing? This book Is the opposite of that. It dares the reader to mean business with patient involvement, engagement, and – most dangerous of all – empowerment. It leaves you with no excuse for not getting on with it, because everything you need is here, bar a tin of shoe polish.

The reason that Julia Cartwright writes with such clarity and authority is that she has actually made this happen. Uniquely, she brought together all the stakeholders in the locality where I practised as a GP for 31 years, and by a mixture of personal skill, energy and endless patience achieved agreement on issues which had plagued us for most of that period. Julia’s co-author, Sally Crowe, is helping to set the agenda for a genuinely patient-centred model of health care through her work with the James Lind Alliance, and its programme of identifying the research that is needed to support this.

When they tell you how to give a presentation, how to deal with unhelpful contributors, how to listen and how to react, do as they say: they know their business.

This is difficult work, and this book could not be more timely. General practitioners driven to despair by having to commission local care within a dwindling budget will find it full of advice on how to share such decisions meaningfully with local patients and politicians. The empowerment of patients is an inevitable part not just of current political rhetoric, but future reality.

User-driven health care is on the way: it challenges each one of us, either as a user or a professional, or both. This jargon-free book, with its excellent links, its clear analysis and its brilliantly practical approach is the best tool I know of to address this coming reality.

Richard Lehman

Medical Adviser,

Health Experiences Research Group,

Oxford University

20 Nov 2010

CHAPTER 1

Introduction

The toolkit series

The ‘toolkit’ series encompasses a number of books and a website published by Blackwell. The concept behind the books is to make complex health care topics accessible and easy to understand to those who need them, particularly: