Personal Health Records E-Book

Mohammad Al-Ubaydli

• Herausgeber: John Wiley & Sons
• Kategorie: Fachliteratur
• Sprache: Englisch

Seitenzahl: 186

Veröffentlichungsjahr: 2011

Beschreibung

Patient-controlled personal health records are the key to successful interaction between physician and patient. They form the core for joined-up communication throughout health organizations. Still, the very name is capable of alarming both patient and doctor. Are they reliable? Are they complete? Are they confidential? Where do you access them? For the doctor, additional concerns surround the implementation: how do you include these online tools in your busy schedule? How much will they add to your existing spend on information technology? Can you get paid for doing all this extra work? Now you can find dependable answers to all of these questions. Written by a physician who has developed his own personal health records software for patients and doctors to interact, Personal Health Records: A Guide for Clinicians explains how to get the best from your patient's records and how to put the information to good use, helping both your patient and yourself to a more effective and efficient outcome in any clinical situation. style="font-family: "Times New Roman","serif"; mso-ansi-language: EN-GB;">"The author is a clinical academic, patient and pioneer in his field and does a grand job of explaining the ins and outs of PHRs in a non-patronising manner for the non-tech savvy" style="font-family: "Times New Roman","serif"; mso-ansi-language: EN-GB;">- From a review published in style="font-family: Cambria;">Health Services Journal style="font-family: "Times New Roman","serif"; mso-ansi-language: EN-GB;">by: Dr Emma Stanton, Commonwealth Fund Harkness Fellow and Specialist Registrar at South London and Maudsley NHS Foundation Trust

Leseprobe

Contents

About the author

About Patients Know Best

Acknowledgments

Foreword

Introduction

Victims of your own success?

Ask your patient for help

Welcome to participatory medicine

Davids not Goliaths

How to use this book

Patients know best

References

What is a PHR?

Electronic health records

Patient portals

Personal health records

References

PART 1 Your patients

CHAPTER 1 Sharing data with your patient

Nobody is as smart as everybody

Safety from numbers

Early sharing gives your patients time to do their homework

Patients can be very good at doing their homework

Patients have lots of data to share back with you

Patients have useful data that have not traditionally been captured

Shared data and shared control

References

CHAPTER 2 Protecting your patient’s privacy

PHRs help and hinder security

PHRs allow privacy

Advising your patients on how to protect their privacy

Protecting your own privacy

References

CHAPTER 3 Patient communities

Wikipedia: the world’s largest community

The value of communities

Communicating in communities

References

PART 2 Your work

CHAPTER 4 PHRs and clinical teams

Everyone has to be on board

Train your team

Stick to patients you know

Assume your writing is read

Say sorry and thank you (early and often)

Learn from patients

Relatives are part of your team

References

CHAPTER 5 Educating patients

Patients are waiting for your encouragement

Informing consent: test your patient’s comprehension

Identifying resources: curation over creation

Turning your patients into data gatherers

Dealing with emergencies

Reference

CHAPTER 6 Saving time in your clinic

Study yourself

Switch to telephone calls

Talk to your team

Talk to your patients

Online consultations

Sending information online

References

PART 3 Your practice

CHAPTER 7 Technology

IT 101

PHR data

PHR hardware

PHR software

Collecting data from patients

Regional data networks

Outsource your IT department

References

CHAPTER 8 Law

Patients (will) own their data

Europe

USA

Rights mean responsibilities

References

CHAPTER 9 Finance

Ask to be paid

Salaried clinicians

Fee for service

Payments from patients

Capital investments

Research funding

References

CHAPTER 10 The future

The future of sharing

Genomics

Using PHRs for research

References

PART 4 Appendices

APPENDIX A Google Health

Creating an account

Adding data

Sharing data

Importing medical records

APPENDIX B Microsoft HealthVault

Creating an account

Adding data

Sharing data

Adding structured data using applications

Index

To Anisa and Buthaina

This edition first published 2011 © 2011 by Mohammad Al-Ubaydli

Blackwell Publishing was acquired by John Wiley & Sons in February 2007. Blackwell’s publishing program has been merged with Wiley’s global Scientific, Technical and Medical business to form Wiley-Blackwell.

Registered office: John Wiley & Sons Ltd, The Atrium, Southern Gate, Chichester, West Sussex, PO19 8SQ, UK

Editorial offices: 9600 Garsington Road, Oxford, OX4 2DQ, UK

The Atrium, Southern Gate, Chichester, West Sussex, PO19 8SQ, UK

111 River Street, Hoboken, NJ 07030–5774, USA

For details of our global editorial offices, for customer services and for information about how to apply for permission to reuse the copyright material in this book please see our website at www.wiley.com/wiley-blackwell

The right of the author to be identified as the author of this work has been asserted in accordance with the UK Copyright, Designs and Patents Act 1988.

All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, except as permitted by the UK Copyright, Designs and Patents Act 1988, without the prior permission of the publisher.

Designations used by companies to distinguish their products are often claimed as trademarks. All brand names and product names used in this book are trade names, service marks, trademarks or registered trademarks of their respective owners. The publisher is not associated with any product or vendor mentioned in this book. This publication is designed to provide accurate and authoritative information in regard to the subject matter covered. It is sold on the understanding that the publisher is not engaged in rendering professional services. If professional advice or other expert assistance is required, the services of a competent professional should be sought.

The contents of this work are intended to further general scientific research, understanding, and discussion only and are not intended and should not be relied upon as recommending or promoting a specific method, diagnosis, or treatment by physicians for any particular patient. The publisher and the author make no representations or warranties with respect to the accuracy or completeness of the contents of this work and specifically disclaim all warranties, including without limitation any implied warranties of fitness for a particular purpose. In view of ongoing research, equipment modifications, changes in governmental regulations, and the constant flow of information relating to the use of medicines, equipment, and devices, the reader is urged to review and evaluate the information provided in the package insert or instructions for each medicine, equipment, or device for, among other things, any changes in the instructions or indication of usage and for added warnings and precautions. Readers should consult with a specialist where appropriate. The fact that an organization or Website is referred to in this work as a citation and/or a potential source of further information does not mean that the author or the publisher endorses the information the organization or Website may provide or recommendations it may make. Further, readers should be aware that Internet Websites listed in this work may have changed or disappeared between when this work was written and when it is read. No warranty may be created or extended by any promotional statements for this work. Neither the publisher nor the author shall be liable for any damages arising herefrom.

Library of Congress Cataloging-in-Publication Data

Al-Ubaydli, Mohammad, 1976–

Personal health records: a guide for clinicians/Mohammad Al-Ubaydli, MD.

p.; cm.

Includes bibliographical references and index.

ISBN 978-1-4443-3252-0 (pbk.: alk. paper)

1. Medical records–Management. 2. Personal information management. I. Title. [DNLM: 1. Forms and Records Control–methods. 2. Medical Records Systems, Computerized–organization & administration. 3. Communication. 4. Patient Access to Records. 5. Physician-Patient Relations. W 80]

RA976.A4 2011

651.5′04261–dc22

2010049540

A catalogue record for this book is available from the British Library.

This book is published in the following electronic formats: ePDF 9781444323924; Wiley Online Library 9781444323917

About the author

Mohammad Al-Ubaydli, MD, is founder of Patients Know Best (www.patientsknowbest.com) and has over 15 years of experience in medical software. He trained as a physician at the University of Cambridge; worked as a staff scientist at the US National Institutes of Health; and ran the hospital chief information officer consulting practice for US hospitals at the Advisory Board Company.

Dr. Al-Ubaydli wrote six books about the use of IT in health care, including Handheld Computers for Doctors and Streamlining Hospital-Patient Communication:Developing High Impact Patient Portals. He is an honorary researcher in personal health records at University College London’s Centre for Health Informatics and Multiprofessional Education, and the University of Cambridge’s Addenbrooke’s Hospital.

About Patients Know Best

In 2008, Dr. Al-Ubaydli founded Patients Know Best, Ltd, a personal health record company, serving clients in the United States, the UK, and Middle East. These include Great Ormond Street Hospital, the UK’s largest children’s hospital, Bupa, the UK’s largest private health care provider, and Thalidomide Trust, providing care to all thalidomide patients in the UK.

The company has been highlighted for its innovation by several organizations, including Seedcamp, who chose them as one of the top 6 start-ups from across Europe in 2009; BusinessWeek, which named them one of the world’s 25 most intriguing start-ups; and the Institution of Engineering and Technology, which highlighted the platform’s innovation (Figure 1).

Figure 1www.patientsknowbest.com.

Acknowledgments

My parents always taught me that if I see something that needs to be improved, I should step forward and do what I can. This is hard but my parents led by example, living a life of service to their country.

What they did not tell me, and I had to learn by myself, is that when you step forward, hundreds steps forward with you. All of them want to help and none of them expects anything in return. Some were already friends, others became friends, and all are filled with kindness.

I am grateful for the help I received from these hundreds even as space forbids me from thanking them all.

First is my mother, Buthaina, who kept my medical records as we traveled between different countries and received care from different doctors and nurses. It was she who, long before my rare genetic immune deficiency was diagnosed, spotted how prone I was to infections and boiled all water before I could drink it. Were it not for her precautions, it is unlikely that I would be alive today, and certain that I would have lost all my hearing to the ear infections of my childhood.

I am also grateful to all these clinicians that helped her and helped me. Not only did they provide the care that I needed, they cared about what I needed and they taught me how to take care of my own needs. I still remember the doctor who stabbed himself with a needle to help me overcome my needle phobia, and the nurse who patiently taught me how to inject myself as I struggled through my fears. The doctors and nurses of Addenbrooke’s Hospital tolerated my childhood sulks, provided me with the independence I needed for medical school, and coached me through the risks of being a doctor on the wards.

It has been a pleasure and an honor to work with my cofounders at Patients Know Best over the past years. When I returned to England from the United States, my priority was to find the best people with whom to create the best company. Ian, Jon, and Richard: I do not know how I managed to find you, but I am so pleased that I did.

Finally, a thank you to my wife, Laura, the secret of my happiness. As a physician and author of medical textbooks, she was the first to utter the words “patients know best.” During the 2 years that it took to write this book, she named our company, spelled out its mission, supported me with her salary, and brought two beautiful girls into our lives.

Mohammad Al-Ubaydli

December 2010