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- Herausgeber: PASSWORD
- Kategorie: Geisteswissenschaft
- Sprache: Englisch
It is possible that a person with Down syndrome can lead a normal life, with full educational, social and work integration. This is the story of Milagros and her resilience in the face of difficulties. Access to decent and properly paid employment is exceptional for people with Down Syndrome, but she achieved it. Many entities are fighting so that people with Down syndrome are not cared for in segregated centers or special employment centers, but rather so that they are on the street, in schools and companies together with any other person. This does not mean ignoring the disability, but adapting the means to the individual needs of each person.
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Veröffentlichungsjahr: 2023
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Libro ingles
Table of contents
A specialist who can help us
time fixes nothing
the first visit
Main treatments
The Humanitarian Code of Conduct
INDEX
Chapter 1: A childhood without violence
Chapter 2: The reality of people with Down syndrome
Chapter 3: Discrimination against the Roma people
Chapter 4:What do you want to do for a living when you grow up?
Chapter 5: Social and labor progress: money is not everything
Chapter 6: Can you end world hunger or loneliness?
Chapter 7: Who really lives in absolute poverty?
Chapter 8: Invisible Working Girls
Chapter 9: Women for Change
Chapter 10: Most violated rights of people with disabilities
DEVELOPMENT
INDEX
Chapter 1: A childhood without violence
The first contact of miracles with the outside world was full of action, remarkable changes and intense emotions. With her first breath, milagros stopped receiving food through the placenta and, above all, the oxygen that allowed her to live and develop for nine months, the air that filled her lungs that until then had been closed and to which hardly any blood reached. . Immediately, his condition was assessed by means of a test, the first review was completed by determining his weight, height and cranial perimeter. After a first treatment of the umbilical cord (and a bath if necessary), it was completed with the taking of the plantar prints and the placement of a bracelet with its identification data, the milagros baby was delivered and deposited on its mother, who experienced a strong affective reaction
The mother lay on her side, as comfortably as possible, resting her head and back on the pillows. Miracles placed herself in front of her, also on her side, so that they maintained visual contact, and also allowed her to hold on more easily and for the mother to I could enjoy the shots.
The feelings of the miraculous parents were numerous when they were informed that their daughter was born with Down syndrome. Above all, when they were unaware of this disease, the parents were overwhelmed by a torrent of sensations, which were not comparable to the initial joy at conception.
Sadness, denial, anger, frustration, and even depression, were the main signs of the parents when they heard the news, they went through several phases and a common trait in many families would be ignorance. They did not know what to do, who to turn to or where to find out. The contact with other parents who had gone through this experience was very helpful. They were the ones who could best describe the details of this experience to the parents of miracles. They provided support and advice, together with a team of professionals, ready to avoid any concern. They talked about it among their relatives or with other parents and they were aware that stability would come. The secret would be to lead a life "as normal as possible, as if their daughter did not have Down syndrome." The first month was a period of coupling with the baby, we had to caress him, talk to him, hold him in his arms. It would not be possible to predict what her future would be like, since it would depend on the education and training she received. The development process would probably be slower than that of other minors, but suffering from this alteration "meant an added difficulty, not a life sentence." During the growth stage, their health and education had to be attended to, mainly, but stimulation was also important to favor integration. The obligations of the little miracles were never forgotten, it was necessary to avoid falling into the temptation of doing things for her because the demands had to be proportional to her ability to meet them. In short, it was about forming a mature and responsible adult,
When he grew up, the choice of school was considered, the fundamental factor that was taken into account was the need for some support in the classroom or an adaptation of the school contents. The advantages of an educational center that favored integration were once again his priorities, growth in an environment of tolerance and diversity was essential. For this, it was beneficial that he participate in extracurricular activities, "where he could play and have fun with his classmates." One should not be carried away by the negative opinions of others", but rather "inform oneself and stay informed", the psychologists recommended that a person with Down syndrome should tend to promote their autonomy so that they are independent. A basic aspect for this would be allow miracles to make their own decisions.
One of the priorities of the milagros parents was to ensure that their energies were focused on ensuring that their daughter with intellectual disabilities reached the highest possible levels of autonomy and independence throughout her life, from birth until she reached adulthood and throughout her life. the aging.
When Milagros was born, the parents knew that children were not born with instructions or a need, the secret lay in applying common sense and the strategy was none other than to love the girl above exhaustion, stress and despair. As parents of three children, they knew what it was like not to sleep at night for months and how incompatible it was in this country to reconcile work and family life, they knew that children did not cry to bother them but because they are having a hard time and what they want was being with their parents, especially with the mother, a defender of breastfeeding, did not agree with the idea that the children spend many hours in the nursery, except when it was strictly necessary.
Natural upbringing encompassed actions such as responding to the cry of miracles, listening to her, trying to be with her without fear of spoiling her, etc. And, on the other hand, although I normally include breastfeeding, a mother who does not breastfeed can also raise her child naturally.
Parents knew and understood that spoiling is raising badly. Spoiling wasn't holding her in her arms a lot, being with her a lot or singing a lot of songs to her. Spoiling was ignoring her, abandoning her….
There was no one way to raise a child well and there was no one way to raise a child badly. What annoyed the mother and many parents was that there were people on the one hand who had good ideas who were deceived and made to believe otherwise: "The father would take her in his arms, but he didn't because they said he was spoiling ” or “he would put her in bed with them when she cried but she wouldn't because they told her she would have sleep problems all her life”. People who are sacrificing themselves doing things that deep down bother them and are not natural, that they don't like but they do it to follow the rules that other people set. And, on the other hand, there are those who make decisions that they may regret over time because they do not have all the data in the equation to be able to decide. If they told you:
