Acne inversa is curable - Christiane Billen - E-Book

Acne inversa is curable E-Book

Christiane Billen

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Beschreibung

Christiane Billen, born in 1969, pharmacist and naturopath, not only wants to use the new Quantum Satis series to educate people about acne inversa (AI, hidradenitis suppurativa), but above all to give hope: The disease acne inversa, which was once classified as "rare", is increasingly becoming the focus of the treating physicians and also of research - and is no longer considered incurable! This is not a matter of course: just 10-15 years ago, the state of research was felt to be almost zero. In many cases, the lack of awareness of the disease led to incorrect diagnoses over the years; In some cases it took more than 10 years until patients received the correct diagnosis after a frustrating doctor's marathon and were thus given a chance to be treated in accordance with the guidelines. So that the chronic course of the disease could at least be slowed down. With the therapeutic options that are now available, however, more and more AI patients have the chance of a pain-free and stress-free life. Not within a few days, but for the foreseeable future if they are willing to do something about it. The earlier the correct diagnosis is made, the better the chances. For this reason, it is also of immense importance that awareness of the disease continues to increase. Therefore, this series of books is also aimed at anyone who has repeatedly suffered from abscesses, "pimples", boils and fistulas within the last six months. And also to their relatives and friends. "In many years of being self-employed in my pharmacy, originally from my own concern (AI patient up to 13 years ago, or the last operation in 2010), my consulting focus on acne inversa developed and meant that I helped numerous people on their way Acne inversa and also from the AI was allowed to accompany. This knowledge should now be a help and hope for even more people. Since acne inversa develops multifactorially, it is often the "little things"... It is the recognition of individual triggers in combination with support from the "right" therapists (experienced specialists in dermatology and plastic surgery, naturopaths, psychologists, specialized wound centers) that paves the way to healing."

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Seitenzahl: 96

Veröffentlichungsjahr: 2023

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About the author

Christiane Billen, born 1969, pharmacist and alternative practitioner,

Founder of Quantum satis (practice for naturopathy & integrative medicine),

With the new Quantum satis series, Christiane Billen not only wants to educate people about the clinical picture of acne inversa (AI, hidradenitis suppurativa) and dispel false myths and crazy therapy suggestions from the internet, but above all to give hope:

Acne inversa, which was once classified as "rare", is increasingly coming to the attention of doctors and researchers - and is no longer considered incurable!

This is not self-evident: only 10-15 years ago, the state of research was almost zero. The lack of awareness of the disease led in many cases to misdiagnoses over many years; sometimes it took more than 10 years until patients received the correct diagnosis after a frustrating marathon of doctors and thus had a chance to be treated according to guidelines. So that the chronic course of the disease could at least be slowed down.

With the therapeutic options that are now available, however, more and more AI patients have the chance of a pain-free and unburdened life.

Not within a few days, but for the foreseeable future, if they are prepared to do something about it.

The earlier the correct diagnosis is made, the better the chances. For this reason, it is also of immense importance that awareness of the disease continues to grow. Therefore, this book series is also aimed at all those who have repeatedly suffered from abscesses, "pimples", furuncles, fistulas within the last six months. And also to their relatives and friends.

"In many years of self-employment in my pharmacy, originally due to my own affliction (AI patient until 13 years ago, or the last operation in 2010), my focus on "acne inversa" has developed and led to the fact that I have been able to accompany numerous people on their way with acne inversa and also out of AI. This knowledge should now be a source of help and hope for even more people. Since acne inversa develops multifactorially, it is often the "little things"... It is the recognition of individual triggers in combination with the support of the "right" therapists (experienced specialists in dermatology and plastic surgery, alternative practitioners, psychologists, specialised wound centres) that paves the way to healing."

Christiane Billen lives and works in her practice in Xanten on the Lower Rhine and in Port d'Andratx on Mallorca.

The Quantum satis homepage with more information & blog:

www.praxis-quantumsatis.com

Information for sufferers, their families and friends

- KNOWLEDGE SHARING HELPS -.

Prologue

Dear Reader,

This book is intended to

help to make the disease Acne inversa (AI) better known in order to enable earlier diagnoses and to prevent much suffering due to the chronicity of the disease

To help people who do not yet know if they have acne inversa and to reduce their fear of going to the doctor.

To be there for people who are fairly sure they have AI but who put off seeing a specialist because they have seen devastating pictures of surgeries on the internet.

be there for people who are quite sure that they have AI, but who put off the important visit to a specialist, because somehow it always works with the traction ointment from the pharmacy.

Be there for people who are pretty sure that they have AI, but who are putting off the important visit to a specialist because it somehow works out with a visit to the family doctor or gynaecologist and a prescription for a pack of antibiotics.

Be there for people who are pretty sure that they have AI, but who put off that all-important specialist visit because it's bad enough to have to go to the surgeon as an emergency at regular intervals, when nothing works, to get some relief by splitting the abscess.

To be there for AI patients who have lost all hope because they have not yet found the "right" therapist and/or have not yet found their own triggers, to be on the path to healing with hope.

To be there for AI patients who hardly see any perspective due to the daily chronic pain: there is hope!

To be there for AI patients who, because of the daily chronic pain, simply cannot find the strength to pick themselves up again and fight against the pain and make their way to a specialised doctor.

Being there for AI patients who, due to years of suffering and the resulting social withdrawal, are now sitting at home, motionless due to pain, possibly unemployed after repeated sick leaves, sinking into depression, after the loss of marriage, relationships, friendships.

...I could expand these images almost endlessly. For a person who has never had to deal with AI, it is hard to imagine the suffering this disease brings.

I, too, struggled with AI for several years. Almost 30 years ago, at a time when seemingly no one knew anything about the disease. That had a huge impact on me. And even though I no longer have any symptoms today:

I still remember very clearly how every single day with AI felt to me! You never forget that...

I still know the helplessness when no one can help you.

And I still remember my marathon doctor's appointment and the decisions I was asked to make - without any guideline basis, without any data to fall back on.

I also remember too well the hair-raising recommendations that circulated (not only on the internet) - and that at some point you reach a point where you are willing to try anything!

But to my AI story and other patient examples later.

Certain medical basics are important for understanding AI, especially to understand the possible triggers and how to avoid them.

For this reason, I will concentrate on the basics in this volume.

Still on my own business:

In publishing the Quantum-satis series, I have deliberately focused on the low-cost e-book variant and the paperback variant:

For one thing, sufferers simply often need quick help, and a download is the best option. Also, AI patients are often restricted in their movements during an acute episode, so that going to the bookshop is pretty much the last thing that is possible.

In addition, there is also the financial aspect, as the constant costs for ointments, bandages, rinses and many other things are not insignificant and put quite a strain on the wallet - sometimes there is simply no money left for a non-fiction book from the bookshop for more than 30 or 40 euros.

For these reasons, this "reduced" version seemed to make the most sense to me.

The aesthete may forgive me that there are no beautiful graphic designs in the Quantum Satis series, as one is used to, for example, in guidebooks from well-known publishers.

Since both my

Acne-inversa blog (at www.praxis-quantumsatis@com)

Acne-inversa-Facebook page (Acne inversa consultation C. Billen alternative practitioner Xanten Port d'Andratx)

as well as the Quantum-satis series

are created outside of my working hours, in the evening hours, I put the focus on the content and not the design.

I would like to take this opportunity to thank from the bottom of my heart

to my friends who have supported me in my AI times and stood by me despite my whining about my pain

to Tine van Loon: her introduction to EMS was the beginning of my healing and the joint training as an alternative practitioner and her constant friendly support was more than valuable.

to my patients, who shared their suffering with me and are the basis for everything...

and of course to my partner Reiner, who has always inspired and supported me in my writing and has always given me valuable tips, my cherie: my muse & inspiration with heart, mind & creativity, so to speak.

I have deliberately refrained from advertising or support from pharmaceutical companies in order to be able to independently write my opinion on the subject of acne inversa, not only now but also in the future.

In addition, I am of course grateful for every small Paypal coffee donation to [email protected]

But it is even nicer: as a small thank you when I have been able to help someone! With pleasure with a few kind lines, and especially with a little feedback by email on the individual course of the disease or the healing process.

It is thanks to the feedback from my patients that my knowledge of AI has developed over the past 30 years. Without this willingness to share sometimes very intimate and private topics with me, none of this would be possible.

I am therefore sure that I will continue to receive positive feedback from you, my dear readers, which I can then use for the benefit of other patients,

I would like to thank you very much in advance,

Yours

Christiane Billen

Acne inversa-patient until 13 years ago

Pharmacist, alternative practitioner and medical coach

Quantum satis - Praxis für Naturheilkunde & integrative Medizin -

www.praxis-quantumsatis.com

Preface to the English translation

Since the number of inquiries from English-speaking countries is constantly increasing, the German version of the first edition has been translated. In the context, some figures from the USA are also discussed, but the overall consideration is related to the European area insofar as statistics, including figures, are concerned. The treatment standards, in particular the guidelines of dermatologists, to which reference is made here, are also based on German therapy. The context was not adapted to the therapeutic status e.g. in Great Britain or in the USA, it is only a translation of the German context. Nevertheless, in Great Britain and the USA, the number of sufferers has increased significantly in recent years, so that this book can certainly be a valuable guide there as well. After all, it is ultimately about understanding the medical basics, about early diagnosis and about dealing with the disease. Whether in Germany or in another country in the world.

I therefore hope that you too, my readers from other countries, can take valuable tips from this book with you on your journey.

All the best to you from my heart,

Christian Billen

Notes on using this work:

For reasons of better understanding and readability, the masculine as well as the feminine form is used for personal designations and personal nouns in this work. Corresponding terms apply to all genders in terms of equal treatment, regardless of age, gender, origin, religion, sexual orientation, disability and ideology. The abbreviated form of language does not include any rating.

The references are contained in the continuous text as follows:

[1], [2], etc. At the end of the work you will find exact information under "Sources".

"In the beginning, every disease is difficult to recognise and easy to cure.

But in the end, every disease is easy to recognise but difficult to cure.“

(Macchiavelli – 1550).

Table of contents

Introduction

1.1. Welcome to the world of acne inversa!

1.2. What can you expect to find in this book?

What is Acne inversa?

2.1. A mysterious skin disease revealed

2.2. A journey through the history of acne inversa

2.3. The mysterious influences: Genetics and environmental factors

The secrets of the skin

3.1 A tour through our skin

3.2 Why is acne inversa not just about pimples?

Understanding Acne Inversa: The Mysteries of Location, Severity, and Clinical Features

The ABCs of acne inversa symptoms

5.1 Lumps, abscesses and fistulas - what do these words mean?